I often hear that I’ve changed since my pulmonary hypertension diagnosis. I constantly speculate about whether this might be true, and then repeatedly realize it’s pretty accurate. Surviving every day with a rare and life-threatening disease like PH takes a toll not only on my body, but also my…
Worth the PHight — Jen Cueva
Jen Cueva lives in San Diego, California, with her husband and mini schnauzer, Zoé. Jen worked in nursing before the script changed upon her diagnosis of pulmonary hypertension (PH), group 1, in 2005. Advocacy has been essential to her life. Her passion is to instill hope and remind others in the PH community that they are not alone. To do this, she serves as a forum moderator for Pulmonary Hypertension News and in her weekly column she delves into the roller coaster of emotions that accompany PH. It is powerful and meaningful to her to have this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey. Together, we PHight stronger!
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When I was diagnosed with pulmonary hypertension (PH) more than 20 years ago, so much of the conversation was about what might be taken away from me: my health, my independence, my plans for the future, and most likely, even my time. What no one could tell me then…
Have y’all had times during this self-quarantine when you’ve lost it? If so, you’re not alone. Last week, my husband was home from work all week. He was feeling achy and had chills for several days, which was far from normal. Thankfully, he did not have a high fever. But…
If you listen to music, you may already know that it affects our mood. I listen to music almost daily. Playing music on Spotify is simple, and I appreciate that I can choose a genre or mood. For example, I like to listen to upbeat music when I am cleaning…
“If I could tell the world just one thing, it would be that we’re all OK.” –Jewel Through the years, I have noticed that within the pulmonary hypertension (PH) community, not everyone shows kindness. I am unsure of why this happens. My guess is that we are human, meaning…
Life is full of the unexpected, the unknowns, and uncertainty. This is no secret. My pulmonary hypertension diagnosis was unquestionably one of my toughest unknowns. Unknowns also may include a job loss, the loss of a family member or friend, and a variety of other life events. I often deal…
As I write this, I am watching the news. Shocker, right? As of the writing of this column, 63 cases of COVID-19 have been reported in the greater Houston area, although that number undoubtedly will increase. Life has been full of unknowns, especially in recent weeks. It is overwhelming…
March is National Kidney Month, the perfect time to remind people with pulmonary hypertension (PH) to take care of their kidneys. I realize people with PH have plenty to keep track of. But PH affects my body as a whole, and yours, too. I am on several diuretics to…
Life is hectic, wouldn’t you agree? Some days I find myself overwhelmed from living with pulmonary hypertension and other coexisting medical issues. More days than not, I am inundated with emotions. But anyone living in today’s busy world can feel this way, too. We are often told how to…
This month, Bionews Services, the parent company of Pulmonary Hypertension News, is focusing on promoting Rare Disease Day with increased advocacy efforts. Several activities are planned worldwide, and I challenge you to locate an event near you. Rare Disease Day is the last day of February, and this…
Recently, it seems that all we hear about is the coronavirus. Between that and the cold or flu that many are dealing with, I must take preventive measures. But how many measures can I take while still living a somewhat normal life? I’ve noticed that others tend to go…
Today is Valentine’s Day, y’all. I know that some of you are eating fancy chocolates and sipping wine, all the while blowing kisses to your love. But for me, Valentine’s Day brings an outpouring of mixed emotions. Fifteen years ago, my life was dismantled in more ways than I can…
If you saw me you would probably notice my bright blue eyes (thanks, Pawpaw) or my huge smile. You might not realize that behind the smile, I am hiding something. I have been hiding the chronic pain that has been affecting me for a long time. It’s not that I’m…
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