Maintaining a Fluid Balance While Taking Diuretics
When I received my pulmonary hypertension (PH) diagnosis I was in congestive heart failure. Since then, I have been taking diuretics to assist my body in getting rid of excess fluid and to…
Worth the PHight — Jen Cueva
Jen Cueva lives in San Diego, California, with her husband and mini schnauzer, Zoé. Jen worked in nursing before the script changed upon her diagnosis of pulmonary hypertension (PH), group 1, in 2005. Advocacy has been essential to her life. Her passion is to instill hope and remind others in the PH community that they are not alone. To do this, she serves as a forum moderator for Pulmonary Hypertension News and in her weekly column she delves into the roller coaster of emotions that accompany PH. It is powerful and meaningful to her to have this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey. Together, we PHight stronger!
Featured Post
Now, more than ever, we must unite for our future
Recent news headlines have sparked significant concern among those of us in the pulmonary hypertension (PH) and other rare disease communities. The massive budget and staff cuts across multiple federal agencies are particularly…
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It’s Time to Stop Feeling Guilty About Self-care
Do you struggle to prioritize your health when confronted with life’s daily demands? It’s a tough job to balance everything, especially when you’re already exhausted. When living with pulmonary hypertension (PH), life can be…
My Challenges Transitioning from Nurse to Patient
As I work on my continuing education credits required to maintain my nursing license, I am reminded of how much I miss my days as a nurse. Prior to my diagnosis with pulmonary…
Our Wedding Vows Took on New Meaning After My PH Diagnosis
On March 14, 1992, when my husband said, “In sickness and in health,” he had no idea just how important those five words would become. I’m sure that like most couples, we repeated our…
My Free Advice to PH Newcomers
Nowadays, we pay for just about anything imaginable. But today is your lucky day! I’m offering free advice to those of you new to pulmonary hypertension (PH). Those who are “well-seasoned” may learn a…
Finding Joy in a Walk to the Ocean While Visiting My Favorite City
A few weeks ago, I wrote about planning happy moments amid the storms. I shared my excitement about a planned trip to San Diego with my husband. The city, my “little piece of…
Educating TSA Agents About PH and Disability Issues
Traveling by plane can be stressful for anyone. Flying with pulmonary hypertension (PH) and other disabilities adds another dimension of stress and anxiety. My husband and I recently flew from Houston to San Diego.
Coexisting Conditions Make Managing PH Even More Challenging
Managing pulmonary hypertension (PH) can be exhausting. Adding coexisting conditions makes it even more challenging. Like me, many people struggle to manage multiple illnesses. In addition to PH, I deal with chronic kidney…
Natural Disaster Preparedness Tips for PH Patients
The number of devastating natural disasters has increased significantly in the past several years. These billion-dollar disasters strike some states repeatedly. Therefore, residents in those areas realize the importance of preparedness. I stay…
I’m Struggling with the Misconceptions of PH
Pulmonary hypertension (PH) is a complicated disease. I am the first to admit that. I live in the mountains and the valleys of PH life daily, and often I am thrown curveballs. While it…
Planning Happy Moments Amid the PH Storms
Surviving day in and day out with a life-threatening illness like pulmonary hypertension (PH), well, simply sucks. My struggles with numerous symptoms and medication side effects weigh me down and rapidly deplete me.
This ‘Advocacy August,’ Let’s Educate Our Elected Officials About PH
“Advocacy August” is here. Because pulmonary hypertension (PH) is a rare disease and has no cure, it is necessary that we promote awareness among those who can make a difference in our lives.
