When my son Cullen experienced a fast and critical decline in health after six years of battling pulmonary hypertension…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
It’s beginning to feel a lot like the day after Christmas. Hopefully, that feeling is joy, but if it…
Imagine you’re walking through an open field. It’s quiet except for the faint trickle of a nearby stream and a…
Slowly, you begin to ascend. At first, you can’t even see the apex of your destination, so already you’re feeling…
Selecting a coloring book wasn’t something I rushed as a child. Testing my parents’ patience, I would carefully page through…
My husband, Brian, was born on his parents’ wedding anniversary. As a child, he disliked sharing his special day with…
I think of birthdays and New Year’s Eve as self-awareness holidays. People often use these holidays to make resolutions…
Take a walk with me. Our senses are awakened the moment we step outside. The sun feels comforting, but a…
When my son Cullen, 22, was diagnosed with severe pulmonary hypertension (PH) in 2008, he didn’t look sick. People…
It’s easy to compare friendship to a favorite painting or song when making a personal connection through experience, emotion, fear,…
My family has grieved the passing of many people over the years. Some died peacefully from natural causes, too many…
In 2008, my then 8-year-old son, Cullen, was diagnosed with pulmonary arterial hypertension (PAH) following a right heart catheterization…