I think people in the pulmonary hypertension (PH) community tend to apologize too much. We are so good at it,…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
Parents sometimes joke that they wish their child came with an instruction manual. If there were a manual for kids,…
Dr. Sean Wyman, a respected advocate and loved member of the pulmonary hypertension community (PH), passed away in 2018…
Perfect Caregivers Are Not Real
The Walt Disney character Mary Poppins is practically perfect in every way. The film of the same name, based…
A Caregiver’s Journey Home
Some say that you can never go home again. I find that such a sad notion, and I recently convinced…
“The surgery went well, with no complications, and the new heart and lungs are functioning beautifully.” Aug. 7 marks the…
Turning the Tables on Caregiving
I will turn 50 in October, and I have ignored worsening symptoms alerting me to a possible health concern for…
I have read that the heart is the hardest working muscle. If you’ve ever seen an echocardiogram of a heart…
I recently dreamed that I was walking toward a hospital room to visit my son, Cullen. A doctor stopped and…
Stress was familiar to me long before my son Cullen was diagnosed with pulmonary arterial hypertension (PAH). Bruce Springsteen sings…
Throughout my son Cullen’s pulmonary hypertension and heart-lung transplant journey, it has been my impression that hospitals try to…
Nurses are remarkable people. My respect for them has grown significantly throughout my son’s pulmonary hypertension (PH) and transplant journey.