Unfortunately, it often takes a tragedy to find out who your real friends are. And, although living with PH sucks, it is a really good obstacle for weeding out people who don’t belong in your life. From friends and family to partners, PH helps separate the…
“You look great!” “Doesn’t she look fabulous?” “I’m so happy to see you doing well!” It is easy for anyone to get caught up in first impressions. We are quick to pass judgment on someone’s physical ability based on a simple…
This podcast series, created and produced by phaware, is offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it via…
I cannot believe 2018 is already upon us. I don’t know about you, but 2017 has felt like one ongoing, never-ceasing stress test. For many reasons. I have never been a big believer in New Year’s resolutions. In my experience, resolutions are cobbled together the first week of…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
My health has always served as an extra filter for my relationships, romantic or otherwise. One man asked me to be his girlfriend on a Friday night and then broke up with me on Sunday, citing his desire for biological children as the sticking point. At…
This week marks four years since my life changed forever. On Dec. 21, 2013, I was officially diagnosed with idiopathic pulmonary arterial hypertension. My doctor told me I had a few years to live. Since then, I have been holding my breath, waiting for the other…
“It’s just not magical anymore!” I cried that Christmas I was in sixth grade, tears falling onto my bed. While my younger sisters and cousins waited for Santa, I was going through an 11-year-old’s crisis. The magic of the holiday season seemed completely lost…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or…
I’m going to get this out of the way. There is no fun side of anger, regardless of how you spell it. I never considered myself an angry person. I saw myself as someone who overcame obstacles, was persistent, and fought and worked hard for the things I wanted…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
The cover of New York magazine’s Nov. 27-Dec. 10, 2017 issue features a child with cystic fibrosis (CF), whose mother, Jen Gann, is filing a wrongful-birth lawsuit. Her midwife failed to deliver the results of genetic testing that revealed…
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