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Life With PH: The Doctor Will Not See You Now

Pulmonary hypertension is the great impersonator. Before I received a proper diagnosis, many medical experts tried to tell me that I had asthma, had been poisoned, or had anxiety. Pulmonary hypertension wasn’t even on their radar. When a young person comes in the ER with shortness of breath, doctors…

Life with PH, and Living in the Present

I used to love dreaming about my future, and thinking about how great things would be someday. Now, as someone with pulmonary hypertension, I have mixed emotions. Sometimes the future can feel like a pretty scary place. I worry about what my body will be able to do on…

Misconceptions About Pulmonary Hypertension

When I was diagnosed with pulmonary hypertension, I learned that it was a rare disease. I had never heard of pulmonary hypertension before my diagnosis, and I learned that none of the people in my life knew about the disease either. For those who might want, or need, to…

Online Resources for Pulmonary Hypertension Patients

When you are first diagnosed with pulmonary hypertension, it can be difficult to find resources for online support. It can be hard to know where to look for support, or where to even begin. As someone who has benefited from the online pulmonary hypertension support community, I wanted to…

So, What Might Make Having PH Worth It?

I have really struggled coming to terms with my diagnosis of pulmonary hypertension. The first year was especially difficult. I felt frustrated that I had a lung disease when I had never smoked in my life and did everything “right” growing up. It didn’t seem fair. I felt…

Life With PH: The Tragically Hip and The Chronically Ill

Staring Down the Barrel On March 24, 2016 the Canadian band called The Tragically Hip announced that their lead singer, Gord Downie had been diagnosed with terminal brain cancer. Shortly after, The Tragically Hip announced that they would be going on a summer tour. Although I…

Saying No, for Now, to Being a Parent with PH

I was diagnosed with pulmonary hypertension on the cusp of my adult life gaining its sea legs. After working a lot of crummy jobs while a university student, I had landed my first adult job with good pay and even better benefits. This was no small feat, because I went to…