The cover of New York magazine’s Nov. 27-Dec. 10, 2017 issue features a child with cystic fibrosis (CF), whose mother, Jen Gann, is filing a wrongful-birth lawsuit. Her midwife failed to deliver the results of genetic testing that revealed…
Columns
It’s the most “wonderful time of the year.” The holiday season has officially begun. For those of us with chronic illness and pulmonary hypertension, it can be hard to look at this season as “wonderful.” Christmas will be here in just a few short weeks,…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
November was Pulmonary Hypertension (PH) Awareness Month. In honor of PH Awareness Month, I shared several patient profiles about special members of the PH community. Although it is December, I have one more profile I wanted to share. You can find the other PH…
I break into a sweat as I reach for my wallet, only to realize it’s not next to me in the car. What if I forgot to lock my car door last night? Did I just open my car door with…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
The other night I sat in my small living room as an episode of “The West Wing” played in the background. I probably was writing something or other, not giving the show my full attention. You should know that I have seen the series through and through…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
Like others in my life, my relationship to food has changed drastically since my heart-lung transplant. Food is so important to me that I once listed it as a main source of happiness in my life (during a rough period in high school). Surprisingly,…
November is Pulmonary Hypertension (PH) Awareness Month. In honor of PH Awareness Month, I will be sharing patient profiles about special members of the PH community. Please be sure to visit throughout the month of November to read more PH profiles. Tegan…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
