Pulmonary hypertension might be an invisible illness, but it isn’t invisible to me. I notice pulmonary hypertension first thing when I wake up in the morning. I roll over, often feeling like a fish tangled in wire, and gingerly try to avoiding stepping on my oxygen…
“I just hate it so much.” This is what I said through tears as I sat crying during a therapy session. I admitted that I do what I’m medically supposed to do 85 percent of the day. Why do I do this?…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
It became difficult to envision many milestones in my life after I was diagnosed with pulmonary hypertension (PH). Getting married, having a career, moving out, and having children all felt just out of my reach. Truthfully, I can still feel those things at the tips of my…
Celebrating the Fourth of July looks a lot like wearing red-white-and-blue bathing suits, sipping drinks with a straw in a festive cup, floating around on inflatable flamingos in a pool, relaxing in the sun, cookouts with family and friends, going to parades, and watching fireworks. My…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read…
Editor’s note: This column is in continuation of last week’s column entitled, “Oxygen in Real Life, Part 1: Young Adults Use Oxygen, Too.” I’ve discovered that news and entertainment organizations either fail to write about rare diseases like pulmonary hypertension or portray them inaccurately. When…
“Strength does not come from physical capacity. It comes from an indomitable will.” ― Mahatma Gandhi What is strength? What do people think of when they hear this word? Instead of thinking about what others would associate with strength, I decided to do my own social experiment. I…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the…
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