Editor’s note: This column is in continuation of last week’s column entitled, “Oxygen in Real Life, Part 1: Young Adults Use Oxygen, Too.” I’ve discovered that news and entertainment organizations either fail to write about rare diseases like pulmonary hypertension or portray them inaccurately. When…
“Strength does not come from physical capacity. It comes from an indomitable will.” ― Mahatma Gandhi What is strength? What do people think of when they hear this word? Instead of thinking about what others would associate with strength, I decided to do my own social experiment. I…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the…
Although pulmonary hypertension caused me to give up my fancy grown-up job, I have been lucky enough to work part-time from home. I actually work for Bionews Services, the company that runs Pulmonary Hypertension News. One of my favorite tasks is browsing through stock…
Every time I visit my clinic, I get anxious. How can anyone with a chronic disease not feel like a bundle of nerves when they’re on a doctor’s visit? As an engineer, quantifying things is a necessary part of my life. I joke to myself that you…
“The scale can only give you a numerical reflection of your relationship with gravity. It cannot measure beauty, talent, purpose, life force, possibility, strength, or love.” –Dr. Steve Maroboli Seven years ago, while in the depths of my…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
“Can we celebrate instead, please?” crossed my mind as my doctor discussed the results of my most recent right heart catheter. He showed me a chart that was sort of like a stoplight. The chart had green, yellow, and red markers. Red is an indication…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
There is an inner dialogue that often goes on in the mind of someone who is chronically ill when asking for help. Ultimately, the outcomes of these inner conflicts are feelings of guilt, shame, and uselessness. It is hard to break out of this…
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