Before I was diagnosed with pulmonary hypertension I was a real go-getter. Now, don’t get me wrong, I loved a day in my sweats and a good Netflix binge as much as anyone, but I worked hard. I was a nanny and worked more than 50 hours…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast…
I have learned the hard way that some of my chronic illnesses should NOT be managed in an emergency room. Some circumstances, however, warrant immediate medical attention. It has been difficult to figure out what exactly is an emergency and what is “normal” for a life with chronic hypoxia,…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
I got a tattoo today. It’s actually my sixth tattoo, but this one is definitely a good one. I decided to get a tattoo of the serotonin molecule. Serotonin, the chemical that helps your brain feels happy. I got it because I haven’t been happy lately. I’ve felt…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly, or read…
Contrary to what we learned in our high school biology classes, not all genetic diseases are easy to predict. Many of you may remember Punnett Squares, where we were able to determine the likelihood of a child having certain outcomes or diseases. While cystic fibrosis (CF) often…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly, or read…
Anyone with a chronic illness is well aware that most conditions are invisible. What this means is that although our bodies tell us something different, we may look completely fine to the outside world. According to the Invisible Disabilities Association, an invisible disability is one that…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly,…
Get regular updates to your inbox.