1. It is OK to get a second opinion… … or a third or fourth. I am currently in the process of finding my third pulmonary hypertension specialist. It took me over a year after my diagnosis to realize that I could get a second opinion. Because pulmonary hypertension is a…
I found that after I was diagnosed with pulmonary hypertension, I received a bunch of off-brand advice. I realize the majority of what I heard from others was an attempt to make the situation better. Unfortunately, some of the words I received at times have been hurtful despite the…
Many people living with Pulmonary Hypertension are on a no- to low-sodium diet. But trying to keep to such a diet can be very challenging, and create obstacles for dining with friends, even for preparing your own meals. People with PH are advised to maintain a low-sodium diet because salt can cause…
I’ve spoken previously about the day that I was diagnosed with pulmonary hypertension. There are a few moments that stick out from that day that will probably stay engraved in my mind for eternity. When I was first diagnosed, the doctor promptly gave me a life expectancy. It couldn’t…
Do you know what the Spoon Theory is? Have any of your friends called themselves a Spoonie? I didn’t know what the Spoon Theory was until a few months after I was diagnosed with pulmonary hypertension. I found out that I was Spoonie after reading more about the theory. If…
In pulmonary hypertension expert and blogger Serena Lawrence’s first post for Pulmonary Hypertension News, she introduces herself and begins to explore the themes of her new blog column, “Life With PH.” Every pulmonary hypertension patient’s story is unique, but Serena’s column seeks to share stories and perspectives that unite the PH…
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