Social Clips

Teens With Pulmonary Hypertension

“It’s a hassle remembering what times I have to take my meds now, and cleaning all of the equipment and whatnot. I really hope that this medicine helps … I just find it a huge distraction.” “It makes me upset that pulmonary hypertension is holding me…

PAH Is the Focus of New Clinical Series Using CXA-10 Therapy

Complexa Inc., a biopharmaceutical company developing therapies to treat fibrosis and inflammation-related diseases, announced the successful completion of a Phase 1 clinical program for its lead drug candidate CXA-10, and the beginning of preparations for Phase 2 clinical trials for focal segmental glomerulosclerosis (FSGS) and pulmonary arterial hypertension (PAH) in 2016.

Experimental PAH Therapy to Be Tested in New Clinical Trial

Eiger BioPharmaceuticals, Inc., a clinical-stage biopharmaceutical company that develops and commercializes drugs for the treatment of orphan diseases and conditions with ineffective current treatments, announced a new license agreement with a leading Japanese pharmaceutical company, Nippon Kayaku. Eiger BioPharmaceuticals aims to develop Nippon Kayaku’s therapeutic drug Bestatin™ (ubenimex) for the…

AHA/ATS: New Pediatric Pulmonary Hypertension Guideline

  The American Heart Association (AHA) and American Thoracic Society (ATS) have issued new guidelines pertaining to Pediatric Pulmonary Hypertension. The revisions come as a result of collaboration between the agencies and were developed in a joint effort by an interdisciplinary team of 27 experienced clinicians and…

PH Awareness Goes High-Tech With phaware365 Mobile App

The Burbank, California-based non-profit organization phaware is a global association dedicated to creating awareness about pulmonary hypertension through engagement and technological innovation to discover and chart the course to a cure. Pulmonary hypertension (PH) is a rare, chronic lung disease that affects the functioning of the heart and…

How To Diagnose Pulmonary Hypertension

  Pulmonary hypertension (PH) is a rare lung disorder that causes constricting and clogging of the pulmonary arteries that are used to conduct blood from the heart to the lungs. Since the disease causes difficulties for the heart to properly pump the blood, the organ needs to work…

Santa’s Parade To Help Boy With PH

According to a Bucks Herald article, Santa Claus will parade through Aylesbury (England) on Sunday, November 29 before ending up at the Friars Square Christmas grotto. The grotto will charge £3 entry for one child and a £5 charge for two or more, with all proceeds will be going…


A Conversation With Rare Disease Advocates