Social Clips

3rd Annual Roberta Baines Wheeler

“The Roberta Baines Wheeler Pulmonary Hypertension Awareness Day is a free day of Awareness, Empowerment, and Hope. The goal is to increase participation in Pulmonary Hypertension support groups.”   Learn more about Pulmonary Hypertension: http://bit.ly/1K4oewk Visit the website, if you want to know more about the 3rd Annual…

Family Of a 7-Year Old With PH Hopes For a Service Dog

Zach is a 7-year old little boy who has been though a lot. He was born with Down syndrome, but has also been diagnosed with autism spectrum disorder; nystagmus, an eye condition where the eyes are constantly moving; sensory processing disorder; sleep apnea; and more recently with Pulmonary Hypertension,…

Pulmonary Hypertension Treatment Info in a Comic Book

  The latest comic book in a peer-reviewed series on pulmonary hypertension(PH) has been launched by Medikis, with the collaboration of the Imperial College Healthcare NHS Trust. The comic book, entitled Medikidz Explains Pulmonary Arterial Hypertension, aims to increase knowledge about the life-threatening disease among younger…

Pulmonary Hypertension – Meredith’s Story

  Meredith knows all too well about Pulmonary Arterial Hypertension. It took her mother’s life when she was 12 and reappeared in her own life when she was diagnosed at 34. She is a stay-at-home mom of two boys – ages three and one. Being told she had a disease…

Pulmonary Hypertension and Cirrhosis

Pulmonary hypertension (PH) is characterized by high blood pressure in the lungs, which affects the pulmonary arteries — the vessels that transport blood from the heart to the lungs. Due to the thickened and narrowed pulmonary arteries, the heart needs to work under stress to properly pump the…

New Hope For Babies With Pulmonary Hypertension

According to Medical News Today, as per the estimated data, almost 1 in 500 infants are born with a pulmonary hypertension — a very risky and congenital heart disease, and affect the lungs too. Children with pulmonary hypertension typically have blockages in their pulmonary arteries, making it harder for…

How Is Pulmonary Hypertension Like a Zebra?

Pulmonary Hypertension is often misdiagnosed. Sometimes it’s confused with asthma, sleep apnea or COPD, because patients present symptoms like shortness of breath, chest pain, dizziness and fatigue. But sometimes these symptoms indicate a different, rare and serious disease called Pulmonary Hypertension. PH is treatable, but because of misdiagnosis, many patients receive care…

Pulmonary Hypertension Patient Walked 75 Miles

November is Pulmonary Hypertension Awareness Month and just one day before the month began, Diane Ramirez, a Duke patient suffering with PH, together with her medicine team, completed a 75-mile walk to raise awareness and funding for this deadly and – still – misdiagnosed disease. Diane Ramirez was diagnosed 28 years…

10 Timeless Cheerful Songs

1. Marvin Gaye – Ain’t No Moutain High Enough  2. Stevie Wonder – Don’t You Worry ‘Bout A Thing https://www.youtube.com/watch?v=BOz3p6k5O2g 3. Lion King – Hakuna Matata https://www.youtube.com/watch?v=xB5ceAruYrI 4. The Beach Boys – I Get Around…


A Conversation With Rare Disease Advocates