In Healthcare Fight, We Saw How Advocacy Works
Over the past several months the PH and rare disease community have seen significant progress towards ensuring that everyone with a condition can get access to the proper specialized care they require.
The Research Report
— Reid D’Amico
At the time of writing this column, Reid had started his PhD in biomedical engineering at Vanderbilt University. He used an engineering approach to research pulmonary hypertension. Reid has cystic fibrosis, and finds much of his drive by experiencing both the research and patient aspects of cystic fibrosis. Reid has also served as a director at the U.S. Adult Cystic Fibrosis Association.
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Dependency and Disease
I do not have pulmonary hypertension (PH). I do not know what it’s like to live my day-to-day life with the symptoms that may come with the disease. However, I do…
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Medicine and Big Data: the Future of Clinical Trials and Discoveries in PH
In the age of big-data large computational power, scientists are hovering over a wealth of information that can unearth the next generation of medical discoveries and therapies. When patients visit a…
Chronic Disease Communities’ Voices Need to Be Heard in the Halls of Power
Every time I visit my clinic, I get anxious. How can anyone with a chronic disease not feel like a bundle of nerves when they’re on a doctor’s visit? As an…
Patient Resources from the American Thoracic Society
This past week, I had the honor of presenting my work at the American Thoracic Society (ATS) international conference. Renowned physicians, scientists, companies, and advocates within the realm of pulmonary…
The Importance of Advocacy in Often-Invisible Illnesses
Last month I had the opportunity to chat up members of the Tennessee Senate about the month of May being Cystic Fibrosis Awareness Month. May 5 is also World Pulmonary Hypertension…
iPSCs Uncover Protective Pathways Against Carriers of BMPR2 Mutation
Contrary to what we learned in our high school biology classes, not all genetic diseases are easy to predict. Many of you may remember Punnett Squares, where we were able to…
My Favorite Ways of Keeping Up with Research into Pulmonary Hypertension
Any time I’m feeling down about my health, I run to the scientific literature. For me, science has a way of re-instilling a sense of optimism that gets lost in the…
Three Things I’ve Learned as an Engineer Researching PH
Some may find it odd that, as an engineer, I research pulmonary hypertension. Even before delving into the definition of what it meant to be an engineer, I envisioned gears turning, buildings…
Pulmonary Hypertension Presents Unique Research Opportunity for Biomedical Engineers
When people hear engineering, many immediately jump to visions of grandiose buildings, beautiful bridges, or complicated machines. The stereotypical vision of engineers has since changed, as many of us have ventured into the field…
Serotonin Receptor as a Treatment Strategy for PAH?
Whether you’re studying pulmonary arterial hypertension (PAH) or another disease, there’s always a sense of joy that comes from seeing potential new therapies finding success in the lab. As someone with a rare disease…
